Posted on Friday, April 6, 2018 at 9:30 a.m. | Updated at 1:30 p.m.
Jonathan Pitre, the Butterfly Child, has passed away
Russell's Jonathan Pitre, known as the Butterfly Child,
has passed away at the age of 17.
Pitre died on Wednesday evening in a Minnesota hospital
after complications from septic shock. Pitre was known as the face of
Epidermolysis Bullosa (EB), a disease that causes the skin to be
extremely fragile and to blister easily.
to the Ottawa Citizen, Pitre entered the University of Minnesota
Masonic Children’s Hospital last Friday when he spiked a fever. He had
been on antibiotics for three weeks battling a skin infection. Pitre
underwent a stem cell transplant almost a year ago and had been in and
out of the hospital with fever and infections
the days since last Friday, Pitre’s blood pressure dropped
several times. By Monday, Pitre's health had deteriorated significantly.
He died at 8:28 p.m. on Wednesday night from sepsis, a condition that
results from the body’s runaway response to an infection.
Over the years, Pitre became the face of EB. He shared his
story worldwide and raised money for the EB charity, DEBRA Canada.
Waves of condolences, thoughts and prayers have began to spread
all over social media.
Source of inspiration
In a telephone interview with the Reflet-News, Mayor
Pierre Leroux of Russell Township described Jonathan Pitre as a source of
inspiration for many, both in his own community and around the world.
Jonathan leaves a legacy of inspiration and of the thought of never giving up,”
Leroux said. “He was a young man with a smile always on his face. I have been a
comic book fan most of my life, and Jonathan and his mother are the closest
thing I’ve ever seen to real superheroes.”
Township has lost a valiant member of its community, noted the mayor, and
everyone mourns with the Pitre family.
our condolences and our sympathy for the family,” Leroux said.